Puppy.

This is Puppy. (Puppy’s the one on the left.) Puppy is a stuffed animal. Puppy is not real. IMG_4290

Several months ago, my sister and I realized it was time to move my mom from the assisted living floor of her Senior Living center to the more structured, protected area designed specifically for residents with dementia and memory-care needs. Moving to this area meant that my mom would not be able to keep her dog Bonnie with her anymore. My mom had reached the point where she wasn’t able to properly care for Bonnie and she was going outside and wandering around more frequently with Bonnie which caused fear that her “sundowning” (Alzheimer’s patients have a tendency to wander in the evening hours, often becoming lost and/or incapacitated) would lead to a scary, dangerous situation. The only downside to moving her would be the loss of Bonnie who had been her only source of constant, 24-hour comfort.

With the advice of the staff at her residence center, we decided to make the move, whereby Bonnie would live with me, and my mom would move into the secure wing. It was a difficult transition as we knew it would be, but within a week of her move, my mom had transitioned into her new room and living situation and adjusted better than I’d ever expected.

A few days after the move, my sister and I decided to get her a stuffed dog to ease with the loss of Bonnie. Alzheimer’s patients eventually regress to a childlike state, and many times, patients are comforted by things like baby dolls, so we decided a stuffed dog couldn’t hurt. Little did we realize what a life-saver this toy dog would become.IMG_4276

During the first week after her move, my mom would carry Puppy (because we couldn’t land on a name and Puppy seemed as good as anything) around and would say things like “I know she’s not real but she’s just as cute as can be and so soft.” The second week, Puppy’s story became “She used to be a real dog but she’s not anymore and she’s just as cute as can be and so soft.”

 

IMG_4281By the third week, Puppy was real. Not just “formerly real” but real. Live. And still “as cute as can be and so soft.”

Here’s what I know about Alzheimers and dementia: you just go with it. Reality doesn’t matter to them anymore, so don’t correct them. Embrace their reality.  When people ask me how my mom’s doing, I tell them she’s doing really well. And she is. She isn’t in any pain. She isn’t angry. She isn’t suffering. She doesn’t know that she’s lost who she was. She lives day to day.

Alzheimer’s sucks. It is an awful disease that has taken away my mom. She thinks that my sister and I are her cousins, she doesn’t remember that my dad died, and she doesn’t remember her grandchildren’s names. But she’s not in any physical pain, she’s not in distress, and for that I’m so very grateful.

The plus side of this is that now we have Puppy. Puppy has become a very real part of our new normal lives. Puppy has become a source of hilarity for my sister and I. FullSizeRender-8

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texts from my sister

Puppy has brought an entirely new creativity to text conversations between my sister and I.IMG_4105IMG_4106 (1)IMG_4107IMG_4108Puppy is a vital part of the family and plays the most important role in my mom’s life. Puppy is so important that, in addition to Original Puppy (the O.G. Puppy) who lives with my mom, Backup Puppy 1 and Backup Puppy 2 are riding around in the back of cars to be brought into the game in case OG Puppy goes missing.

Backup Puppy 1
Backup Puppy 1
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Backup Puppy 2 (Or maybe 1. Does it really matter?)

 

 

 

 

 

 

 

Here’s the other thing about my mom’s Alzheimer’s. She doesn’t know that I’m her daughter, she doesn’t know that her husband of 55 years died a year and a half ago, but she still has foundational relationships. She may think I’m her cousin, but when she sees me or my sister, she knows that she trusts us and we will take care of her. She can’t follow a story line or plot in a book or movie anymore, but she still writes down Bible verses in a notebook. She carries her Bible with her almost as much as she carries Puppy with her. Those foundations in her life remain, despite so much else in her history that has fragmented away. So when people ask me how my mom is doing, I say she’s doing really well. She’s carries around a stuffed animal that she talks to and thinks is real … but when I walk in as she’s taking a nap and find Puppy at her side, I know she’s doing really well. I remain grateful.IMG_4787

P.S. You can follow more of Puppy’s hijinks on Instagram: @alzpuppy.  FullSizeRender-4

It’s Not You, It’s Me

This has been the hardest six months of my life. The. Hardest. I’ve been through some dark periods before (like when I asked my doctor for a hysterectomy because I couldn’t stop crying and I figured that would take care of it. He very gently suggested that perhaps I could try a low-dose of antidepressants as a first step instead of going for all-out removal of body parts).  But this last six months has body-slammed me MMA-style to the mat.
My dad died of cancer in January and my sister and I immediately became full-time caretakers to our mom who has Alzheimers. Today – after 6 months of round the clock care with one of us spending every day and night at her house – we moved her into a Senior Living Center. I can’t think about what that really means in the whole big picture because I’ll fall apart. Again. It feels like that gut punch when I walked into my parents’ house and found my dad on the kitchen floor. It means she won’t be coming home again. Ever.
People have been asking me to write a blog for years – mostly because I seem to have hilarious life adventures that don’t seem like they could happen in real life. But the idea of putting myself SO out there in a blog has always scared me. I mean, the best stories – in my opinion, the most hilarious stories – are the ones of me getting rejected by one man or another. I have handled Life’s disappointments mostly through humor (yes, the Powerpoint of Rejection was a real thing that I made, yes it had a soundtrack, and no, you can’t see it because it’s been deleted), a lot of tears and some antidepressants. Still, it feels too vulnerable and honestly, too humiliating, to just go all emotionally out there like that. I mean, one guy seriously used the “It’s not you, it’s me” line. ARE YOU FREAKING KIDDING ME WE’RE ADULTS. You can’t even come up with something better than “It’s Not You, It’s Me?” Ouch.
But then my dad died on January 5. All of a sudden my biggest champion in the world who made me a better person and taught me how to live life well was gone. I moved into the Full-Time-Caretaker-With-My-Sister role for my mom who is no longer the mom I grew up with. And I realized that Life just sucks some times. It sucks worse than being told “It’s not you, it’s me,” or losing a friend because I sent an Ambien text that I don’t remember, or having a coworker rip me apart. It’s just hard. Like curl up in fetal position and eat your feelings through a box of ice cream Drumsticks kind of hard. And it’s ok to accept the suckiness. If I can share that suckiness, and more importantly, know that I can get to the other side of the suckiness, and putting that out there helps someone else get through their own suckiness? Well, then maybe it’s worth the potential humiliation.
What I have learned in the last six months is that God has never been more real to me & my faith has never been more real to me. By the grace of God & my sister, the unwavering love and support of a few friends and a great dog, step by step & one day at a time, Life gets less sucky. I will move out of this period into the next one, and the next time Life kicks me metaphorically in the groin, I’ll know I can come out the other side.
So all of this is to say, I feel like I need to apologize to anyone who’s come through my circle in the last 6 months; like I need to apologize for not really being a functioning member of society or a good friend. Part of me thinks “screw it” – I don’t have any emotional energy left to deal with hurt feelings when I’ve felt like I’m cracking apart inside. But that’s not right either … to be intentionally callous and insensitive toward others. So to anyone who I unintentionally hurt, I am sorry. To those of you who invited me to something and I didn’t go, I am sorry if it seemed like I was rejecting you. I wasn’t. I was trying to get through a day without falling apart. There will be days when I will continue to struggle to get through a day without falling apart. It’s not you, it’s me. (Oh, wait …)
Those of you who haven’t freaked out when I started crying awkwardly in front of you, or said something inappropriate to get past a painful moment, thank you for putting up with me and loving me despite myself. And to everyone else … life is never a cake walk and it’s never easy and it never goes exactly the way you planned it. But it’s pretty cool to look back and see how God works it all out. He is for me.
And really … let’s all do better than “it’s not you, it’s me.”